“Before, says Peretti, she was “very scared of showing people I had a disability. For a long time, I tried to be better than a ‘normal’ person. It was stupid. Now I know that we are all different, and we only have to be ourselves. I am this way: a writer, a woman, a person with a disability.”
Like a child afraid of the dark, the unknown filled her with dread. “Now I know that no one can control the future. We don’t know what will happen tomorrow.”
For Mafalda, a keen goalie, letting in a goal because she doesn’t even see the ball coming and being ditched by her oldest friend, are particularly unexpected. Without self-pity she crosses “having a best friend” off her list of essential things. “I thought, for a long time,” says Peretti, reflecting on her own attempts to suppress her need for human connection, “that it was very hard for other people to be close to someone with a disability, or problems in general. But it wasn’t hard for me to be with marginalised refugee children. It’s not hard to be with someone who needs help.
“Being lonely was a great fear of Mafalda’s, and of mine. It is a sort of death, being lonely. Finding a true friend, a real friend, is the most important thing for Mafalda – and for me as well.””
How my heart sings 